Two part post part 2: PJ

Today's Part 2: Pepper

On November 15 PJ turned 6 months! She is getting so big. By my rough home estimates she weighs about 20 lbs. and is about 28 inches tall.

For someone that can't crawl yet she sure is mobile! She almost has it though. She gets up on her hands and knees and rocks but everytime she tries to lift a hand she looses her balance and does nose dive.

During the past two weeks PJ has been seen by the baby tooth fairy and been blessed with her two bottom teeth!! Yesterday the second one came in so she enjoyed her very first graham crackers!

During the past week she has also added some new sounds to her baby babble. Finally some consenents have joined all the vowel sounds! First was MAMA then last night B joined the word party for BABA. I dont count those as first words but I am glad to finally hear them!

PJ can sit for short period of time on her own before she looses her balance and slumps to the right or left. She is generally happy to sit, but doesnt care for the bumbo much as it always makes her throw up. She is still fighting with some reflux, so I think at her 6 month check up in December I will ask about some Zantac.

She is still the happiest baby I have ever seen and super easy to get along with in her personality. Which makes her my little dolly peach baby and makes me feel so grateful we have her in our lives.

And if you like the Chirstmas photos they were taken by the uber talented Jenni Hitt of JL Photography!

Two Part Post: Part 1- Baylie

I am doing two posts today. Part 1- Baylie Part 2- Pepper. Next month I will do a two part post Part 1 Daisy Part 2 PJ.

So Part 1 for today: Baylie.

Baylie has had some testing done this month with Children's in Denver. The first was with the pulmonary (sleep and breathing) clinic. They had no explanation for Baylie not sleeping. However they did give a RX for clonazepam- which is a seditive used as a sleep aid. I works wonderfully! It has been really nice to finally get some sleep- no more head banging!!!

The next meeting we had was with the genetics specialist from Children's. And after almost 4 years of searching for the reason Baylie acts like Baylie is this: she has a chomosomal abnormality. On the first chormosome pair on chromosome #1 Baylie has a triplication within the chomosome itself. This is different from say Down's Syndrom where there is an actual third chomosome. But they have never seen this triplication in this place on this choromosome. So Baylie is the first reported documented case-ever. Which means that now we have a answer, but they dont know anything about it. James and I will have to have our genetic maps done now to see if we passed it to her or if it unique to Baylie. Now if everything I just explained is Greek to you I have posted a picture below of a normal human chomosome map. The circled area with the red arrow is around the area that her triplication happens.

Okay so thats what we know for Miss B. we will start working with a Neuropsychologist out of Billings in January- hopefully they can help her with the behavioral problems.

AND if you like the pictures of Baylie they were taken by the fabulous Jenni Hitt of JL Photography.

Halloween 2010

Our pictures from this Halloween. I told James we have to dress up next year :o) Enjoy!

Baylie and Daisy painting their pumpkins

Mr Smiley, our family pumpkin

Daisy as a black cat. she think that this is a camera smile like this :oD

Baylie as a leapord cat. she is pretending to actually be a kitty.

pj as raggedy ann- i made all of her costume!!