Two Part Post: Part 1- Baylie

I am doing two posts today. Part 1- Baylie Part 2- Pepper. Next month I will do a two part post Part 1 Daisy Part 2 PJ.

So Part 1 for today: Baylie.

Baylie has had some testing done this month with Children's in Denver. The first was with the pulmonary (sleep and breathing) clinic. They had no explanation for Baylie not sleeping. However they did give a RX for clonazepam- which is a seditive used as a sleep aid. I works wonderfully! It has been really nice to finally get some sleep- no more head banging!!!

The next meeting we had was with the genetics specialist from Children's. And after almost 4 years of searching for the reason Baylie acts like Baylie is this: she has a chomosomal abnormality. On the first chormosome pair on chromosome #1 Baylie has a triplication within the chomosome itself. This is different from say Down's Syndrom where there is an actual third chomosome. But they have never seen this triplication in this place on this choromosome. So Baylie is the first reported documented case-ever. Which means that now we have a answer, but they dont know anything about it. James and I will have to have our genetic maps done now to see if we passed it to her or if it unique to Baylie. Now if everything I just explained is Greek to you I have posted a picture below of a normal human chomosome map. The circled area with the red arrow is around the area that her triplication happens.

Okay so thats what we know for Miss B. we will start working with a Neuropsychologist out of Billings in January- hopefully they can help her with the behavioral problems.

AND if you like the pictures of Baylie they were taken by the fabulous Jenni Hitt of JL Photography.

Halloween 2010

Our pictures from this Halloween. I told James we have to dress up next year :o) Enjoy!

Baylie and Daisy painting their pumpkins

Mr Smiley, our family pumpkin

Daisy as a black cat. she think that this is a camera smile like this :oD

Baylie as a leapord cat. she is pretending to actually be a kitty.

pj as raggedy ann- i made all of her costume!!

5 months

welcome fall! as we roll into the middle of october miss pj turned 5 months old! She is about 19 lbs and (after a recent growth spurt) is about 28 inches long! she is still as sweet as sunshine and happy as the day is long. so without further delay pictures of all the kiddos from the past couple of months!

baylie in a bow!

This was taken last summr (2009) those would be my two sisters Fawn and Jamie (respectively)

Daisy being cute

baylie being cute

pj passed out in the swing

attempting to get a good 5 month picture

Here it is! a good 5 month shot of pj!!

her first go with sweet potatoes!

Looking very halloweeny in her spider shirt!

i love the angle it makes me smile :)

so cute!

4 1/2 months

Hi everyone! Well its that fall time of the year again!! I see leaves changing and less day light happening all around me. Though our temps have had a few cool days mostly they are still pretty warm *knock on wood*. Today PJ had her 4 months well child check and shots. I hate having shots done. PJ is such a happy baby that I hate making her cry that way, but it must be done! So, here are her stats:

17 1/2 lbs (95%)
26 inches (90%) and
her head they didnt give me the measurement on just told me it was in the 60%.

I can feel and see the corner of her first tooth which is maybe a week or so away from breaking surface so long as it doesnt decide to go back down! Shes trying hard to crawl and gets very frustrated that she can't go join her sisters. Shes figured out how to scoot backwards though, thats pretty amuzing.

Baylie is still loving school. We go back to Denver to talk with a doctor in the sleep clinic there next Friday. All the tests we've had done for her have come back fine, so we are on the schedule book with a genetisist. Why? Well when chemical levels in the blood are okay, MRI is clear, Neurology looks fine and no one can figure out her special issues then its time to see if its in the blood make-up. We will be seeing a neuropsychologist sometime in the near future (yet another trip to Denver!)

Daisy is doing well. I am looking forward to putting her in pre-school come January! I am so sure she will thrive and grow in a school like setting.

James is also doing okay. He still works for TSI. Still hates it. But if I can find a good paying job by January James will quite TSI and go back to school full time! He is very excited about the idea of going back. He says he'd like to go for his associate degree in desiel mechanics. I think he will do well there. I just hope we can make it happen for him.

I am doing ok too. I am searching for a job as I mentioned above and until then enjoying the time I am home with my girls (esp. Pepper...who doesnt love a happy cuddley baby?) I know that I am going to start Christmas shopping this month, and I have the kids' halloween costumes picked out, I just need to start making them!

Thats it for the Soesbe household for right now!

happiest baby on the block

My little PJ is just such a happy thing and such a sweet baby! I thought I would share some pictures from the other day!

three months and horsin around

Hello ya'll! I hope summer has been treating you good. Our summer closes on a sad note as my mom had to go back to florida. She will be there until December.
But on a happier note i have pictures for your enjoyment!

First up: Daisy and the blue flower headband i made for her

Next, when the county fair was happening my friend Ciara was in for open class horse, she was nice enough to let us come ride for a while!

Followed by Pepper my now supported sitter. Shes been doing this since the beginning of august, I finally broke down and bought her one of those bumbo seats...she really like that!

Shes also doing amazing with holding her head up and head control, she gets those legs to kicking and her butt in the air, i imagine that by the time shes about 4 1/2 to 5 months she will be at least doing an army crawl.

This last one is daisy modeling her pettiskirt, she and baylie both got them and we are having some professional pictures done this friday in them...tomorrow i am making shirts to go with the skirts, and i made pepper a rainbow tutu!

The Plan...

So after seeing a number of my friends and relatives over the past few months I have realized that I am out of shape. I am ready to change that! I am thinking that I am going to get a membership somewhere (where ever its cheapest!) and whenever James gets home at night I will go work out.
The goal is to get at least 3 nights a week to start. I am also going to (finally!) start watching what I eat and how much. The how much is my biggest problem right now.
My weight loss goal is 70 lbs. The ticker to the side here is my marker. I will weigh myself once a week on Sundays.
The final goal is to have lost the 70 lbs by....((drum roll please))..........Christmas. I have 20 weeks to loose 70 lbs! Whick is roughly 3.5 lbs a week, well within the range of 'normal and safe'.
If there are any takers that want to join me on my weight loss challange I would love company. These things always work better if you have a partner or support.
I am hoping that going back to work (when ever I can find a job) will help too! Let me know if you want to be my belly buddy (lol) as I do love company!